Get Involved

Volunteer or fundraise

Chloe’s Fight Rare Disease Foundation relies solely on the work of volunteers to make our organization happen. We have a range of volunteer opportunities available such as

  • volunteering at the Big Fat Greek 5K (September 6, 2019)
  • participating on a marketing or event committee
  • hosting your own “Wear Something Rare” party (toolkit coming soon)

If you would like more information on any of the above opportunities contact us at

Join the MN Rare Action Network

RAN is a grassroots advocacy group focused on enacting state and federal policies that improve the lives of the rare disease community. We are working toward faster diagnosis, increased treatments, and access to care for the rare disease community.

Want to learn more about specific Minnesota Rare Action Network priorities and how you can get involved? Come out and meet your Minnesota State Ambassador (who also happens to be our Executive Director!) at the Southdale Library from 7:00 pm to 8:30 pm the last Thursday of each month. It is a great time to network with other advocates and discuss issues facing the Minnesota Rare Disease community.

Facebook page:

More info here:


Chloe’s Fight Rare Disease Foundation has several events each year and your participation is vital! See “events” tab for upcoming opportunities to join us as we give every child the chance to fight.


Event Sponsorships

5k Sponsorship Packet (click here)
September 6th, 2019 is the 9th annual Chloe’s Fight 5K Fun Run/Walk presented in partnership with the Taste of Greece. The event’s goal is to raise awareness and funds to promote local research on childhood rare genetic diseases at the University of Minnesota. This year’s goal is $20,000 to support the work of dedicated physician researchers at University of Minnesota Masonic Children’s Hospital. Call 952-457-6956  or email today to sponsor this event. See sponsorship information here.


Fundraise for Chloe’s Fight at the 5K

After you register for Chloe’s Fight, create your own personal page to encourage friends and family to support you or your team at the 5K. It’s so easy to set up your own fundraiser with crowdrise!